The Boob Caper Begins

It was May, I was on vacation, and I had decisions to make. I had recently turned 54, and since entering my fifties, I’d had back surgery to remove a herniated disk (successfully); reawakened my artistic aspirations and launched myself into producing and showing my artwork; taught myself how to use Photoshop, Illustrator and InDesign; designed and built a website for my photography; won art awards; served as an officer on the Employee Council at the local hospital where I worked; served on the Executive Board of the Wickford Art Association; started a long, complex action against an abusive boss; changed jobs by transferring to another department; and ultimately helped get the abusive boss fired. I had also been through “the Change,” as my mother’s generation called it, and was now officially post-menopausal. I had, therefore, also survived three years of hot flashes and night sweats that were turning into a personal thermostat set on high all the time. I had not had a good night’s sleep in two years. I ruefully remembered my mother going through the same things, but she was no longer around to commiserate. I was still fairly slender, but only because the fifteen extra pounds I was carrying had a lot of room to spread out on my 5′10″ frame. I was certainly not as fit as I was used to being, but only because I was always hot, sweaty and tired. Why would I want to get more hot, sweaty and tired at a gym? I couldn’t bear even to think about it. Besides, thinking hard made me break out in a soaking sweat. People marvelled at all the things I managed to do and wondered how I had time to do them. “I’m over 50,” I answered, “I don’t sleep anymore.”

But 2008 was different. I was more than tired. I was weary, weary to the bone, weary in my soul. I felt like I needed to slow down, way down, and simplify my life somehow. I believed in volunteerism, but I also had to acknowledge that my current volunteer activities were taking a lot more from me than they were giving me anymore. I needed to get un-involved. I had enough artwork to keep me going through my usual round of juried show entries through the rest of the year, but I felt like the inspirational well was dry. I needed to change direction in my art, but I didn’t quite see where that direction would be. I needed a fallow period to be quiet, to regroup, to recharge my batteries.

I was on vacation for two weeks during the end of May, one of the most beautiful months in southern New England. Trees were flowering in pastel profusion. Lilacs and azaleas and daffodils and hyacinths and tulips were in bloom everywhere. It was warm but not hot. A good time to rest and reflect. With one thing and another, I hadn’t had an annual physical in a few years. So, I went to my doctor and got one. Along with the exam itself went the Pap smear; the annual mammogram; another bone density scan because I was post-menopausal and had a maternal risk for osteoporosis; and lab work to check my blood levels and my cholesterol, because I had a paternal risk for heart disease. I also bit the bullet and finally scheduled a colonoscopy. My cousin Patty had died of colon cancer the year before and I knew I’d better not put it off any longer. I had to wait till the end of July to get the colonoscopy, which was just as well. Because in the meantime, I found out I was osteopenic and that my cholesterol was too high. Suddenly, I had to take medication for something more serious than seasonal allergies. Oh, goody. Thanks, Mom and Dad. Love getting older.

The one thing I wasn’t worried about at all was my annual mammogram. No one in my extended family had had breast cancer. My maternal aunt had had ovarian cancer, but she survived. My uncle had died of melanoma, but he was a golfer, and I had been careful about sun for years now. So, I was sanguine about going to the local mammography clinic, run by my esteemed employer, to get my boobs squished. I said hello to a few colleagues, changed into a pink ‘janie’ and waited my turn. My mammographer was aware that I was a physical therapist and a sister employee, so we kibbitzed about this and that during my exam. She asked to me to wait while she checked the images in case she needed to do any over. Sure enough, after a few minutes, she brought me back in. I was used to this, because my breasts were small but fibrous and it was difficult to get the axillary margins to show clearly. When I entered the exam room, however, she did not take more images, but had something to tell me.

“Listen,” she said, “they’re going to call you in a few days and have you come back in for a more detailed mammogram. There are these tiny calcifications on the films of your right breast that they’ll want a closer look at.”

“Okay,” I said, without any particular concern.

“Most of us have some calcifications in our breasts,” she continued, “so they’re probably nothing, but sometimes they turn out to be ductal carcinoma, which is an early form of breast cancer. It’s not invasive, but it is cancer, so we need to see what’s going on with you to make sure that’s not what you have. Chances are you’re fine. But they’ll be able to tell for sure by taking more pictures.”

“Okay,” I said. “No biggie. I’ll wait to hear from you guys.” That was June 20th. Five days later, I got a call from Radiology asking me to make an appointment for a diagnostic mammogram. On July 8th, I had it. The radiologist came into the exam room after reading my images and, with all the warmth of a cadaver, announced unceremoniously, “You need to get a biopsy.”

“Okay,” I said, thinking, if this is your bedside manner, I’m sure as hell not getting it here.

Meanwhile, my primary care physician was on vacation, so I couldn’t ask him for a referral. He’s allowed to be on vacation. I wasn’t too concerned. After all, I work in health care, so I did not lack for people from whom to get a few suggestions. The same name came up several times, and with the same level of enthusiasm, from the nurses and administrators who are my friends at work. So I got the phone number for this breast surgeon they all mentioned, and called her office to make an appointment. I didn’t know then that this would be the first of many calls and visits, but I was already feeling a bit more tense. After all, a do-over mammogram is one thing, but a biopsy is another. Still, I wasn’t all that worried. If I were going to get cancer, breast cancer was not the one I figured I’d end up with.

Clearly, I’d make a lousy fortune-teller.


Please click on the post title or the comment link below to post a response.

pixelstats trackingpixel

A Model Survivor

One year ago this month, I heard four words from a doctor that changed my life as I knew it. Those words were, “Your biopsy was positive.” To celebrate the fact that I’m still here, I’m going to post some new stuff and some old ramblings about this journey I have taken.

Today, I spent all afternoon fooling around with light, backgrounds, composition, my hair, my lipstick, and Photoshop in order to get the above image. It makes me laugh to look at it. It has rather a “Take THAT, breast cancer!” sort of attitude about it. “Nyah, nyah! I’m still hee-errr!!!”

I think that’s a good way to start the celebrating. Oh, and Happy Independence Day, too.


Please click on the post title or the comment link below to post a response.

pixelstats trackingpixel

Prevention, Personal Fans & Party-Planning

Sometimes you have to hear something a few times before you allow it to sneak past your healthy skepticism or your unhealthy denial and actually sink in. A case in point occurred the other night, on June 29th, when I went to hear Susan Love speak to a Rhode Island audience about breast cancer. She said a lot of things that were much more important, which I’ll get to in a minute. But one of the things that I had evidently not heard often enough was that having hot flashes while on tamoxifen is good.

It’s kind of a math thing. Tamoxifen cuts the risk for a recurrence of breast cancer by 50% for those of us who’ve already had breast cancer. One of its side effects is hot flashes. There is some genetic research which indicates that all of us may not be able to metabolize tamoxifen effectively. However, the test for this runs to $500 and is not usually covered by insurance. Here’s where the math thing comes in. You can infer whether you are metabolizing tamoxifen without a test by noting whether you have side effects or not. Ergo, if you are on tamoxifen and you have no hot flashes, you probably need to be tested to see if you’re metabolizing it at all. If you have some hot flashes, you’re good. If you have insufferable hot flashes, your dose of tamoxifen probably needs to be decreased. So, to review: in order to determine that you are utilizing the tamoxifen you swallow daily in order to prevent breast cancer from coming back, use this simple math.

Hot flashes = 0, bad. Hot flashes = 1n, good. Hot flashes = 3n, reduce the dosage.

Okay??? So, I’m in the ‘hot flashes = 1n’ group, which is good, which means the tamoxifen is doing it’s thing and keeping the stalker at bay, kind of like a chemical restraining order. Therefore, I have finally decided to embrace my hot flashes. Although, I can’t embrace them very well, because my arms are all sweaty and they keep sliding off me when I try to hug myself. By the way, you can actually buy that personal fan by clicking on the picture.

You’re All Invited
One year ago this month, on the 24th to be exact, I was diagnosed with the Beast. At times, I don’t know whether to rage or party, but being the person I am, my inclination is to do both — at the same time! I don’t know if I’m up to throwing a party my own self, but I invite you all to “Tickled Pink,” an evening of comedy and camaradery for breast cancer survivors and their peeps that is sponsored by the hospital where I got the Beast removed. I went to this last year and laughed my ass off. It happens in October, details to follow when I have them.

Join the Army
So, back to Susan Love. As is her wont, she talked about research in her characteristic down-to-earth fashion. She also described breast cancer treatment as the “slash-’n'-burn” method. Hmmm, where have we heard that phrase before?? Why, from the Accidental Amazon herself!! Ah, great minds think alike, is all I can say. We don’t know a lot about what causes breast cancer, but we surely won’t find out without research. To that end, Dr. Love started the Breast Cancer Research Foundation and, as an adjunct to that, the Army of Women. If you join the Army of Women, you are simply signing up to say that you would consider participating in a research study into the causes of, cures for, aftermath of, treatment of and consequences of breast cancer. You don’t have to have had it to join. I’ve joined. I’ve participated in a study. It’s easy. Just do it. Here: Army of Women

So, what do we know? Here are some highlights from Susan Love’s talk:

  • There are about four to six different kinds of breast cancer.
  • Breast cancer occurs only when potential cancer cells are present AND they are switched on by the right environment. If there are cells but an unfriendly environment, then there will be no cancer.
  • Among all the possible predictors that have been examined, breast density is probably the most reliable predictor in determining who might develop breast cancer.
  • Therefore, if post-treatment mammograms show that breast density is decreasing over time, then the survivor’s chances of developing breast cancer again are also decreasing.
  • Exercise decreases the risk of developing breast cancer, but we don’t know how.
  • Risk factors for breast cancer are probably different for different types of breast cancer and for different groups of people.
  • In the Third World, breast cancer occurs mostly in pre-menopausal women. In the Developed World, i.e., the West, it occurs mostly in post-menopausal women.

Interesting stuff, with lots of implications for future treatment and research.

Last But Not Least…
For heaven’s sake, VOTE FOR MY BLOG!!!!!! If you all vote once daily (or more, if you can vote from different computers) through July 6th, I can catch up to the leading vote-getters and win! Truly, this blog is a lot more provocative than the leaders. Really. We have to get another few hundred votes in over the next five days. So, click here, click on the link for the “Provocative” nominees & vote!!

2009 BlogLuxe Awards


Please click on the post title or the comment link below to post a response.

pixelstats trackingpixel

Close To Home

Dr. Jerri NielsenAround the time I turned 55 earlier this year, I was finding out that my first six-month post-slash-’n'-burn mammogram appeared to show some possible further breast cancer, for which I was advised to get another diagnostic mammogram as soon as possible. My best birthday present this year, far and away, was being told that this second mammogram was all clear and that I was off the hook for six months. After you’ve been ‘on the hook’ for nine long months, which have often felt more like nine years, a six-month reprieve from cancer is better than winning the lottery.

Yesterday, Jerri Nielsen ran out of reprieves.

The news story of her death came over my car radio as I was riding to my next patient visit. I remember her remarkable story from a decade ago. In June of 1999, Dr. Nielsen made national headlines when she found a lump in her breast as a 47-year-old physician stationed at the Amundsen-Scott South Pole Research Station. She was the sole doctor on the research team, which was effectively stranded at the Antarctic base then due to the severe weather of the Antarctic winter. Communicating with oncologists by email, she performed a biopsy on herself, with two colleagues assisting, and treated herself with chemotherapy meds that were dropped by parachute to the station by Air Force pilots. Finally, in October, in temperatures of minus 60 degrees Fahrenheit, a plane was able to land briefly to pick her up — her colleagues literally throwing her into the plane, then immediately retreating from the weather before she could say goodbye — and bring her home. After treatment, her cancer went into remission.

In 2005, her cancer returned, to metastasize to her liver, bones and brain. She continued to speak publicly about her battle with the disease, and was interviewed as recently as March of this year. Yesterday, she lost her life to breast cancer, surrounded by her family in Massachusetts. She was 57 years old.

I pulled the car over to the side of the road and cried.


Please click on the post title or the comment link below to post a response.

pixelstats trackingpixel

Papa, They Took My Kodachrome Away!

The Kodak LogoOkay, as a photographer, I have to mark this occasion, which is the day that Kodak stops selling Kodachrome, that wonderful color film immortalized in song by Paul Simon. Don’t feel sorry for Kodak, though. They are doing all right in the digital age, selling digital cameras & printers & stuff. But this does signal an era coming to a close. There are some purists who still play with film. I’m not one of them. I spent enough hours as a lackey in my father’s home darkroom, inhaling fumes and getting chapped hands from stacking prints as they rolled off the drum dryer, that I have never harbored any particularly sentimental feelings about chemical photography. Photoshop rocks!! Believe me, if my dad were still alive, he’d agree. He’d be all over digital photography like white on rice. I thought of him yesterday, on Father’s Day. I ended up being a lot like him, with that left brain/right brain equality thing going on, which is the perfect kind of brain for making digital art — part geek, part bohemian!!

Miss you, Dad! Thanks for everything!


Please click on the post title or the comment link below to post a response.

pixelstats trackingpixel

These Heels Are Made For Walking

I hope you like the new avatar. It’s a composite of a real photo of my legs, plus some catalog photos from an archery supply website. Those are my actual legs, and that is an actual tattoo on the right one, which I got a few weeks ago so that the only tattoos on my body would not be the ones I got for radiation. The red, peep-toe high heels I bought the last time I saw my breast surgeon. That took place a few weeks after I fell on some ice at work and got a concussion, and a week after I had gotten my first six-month post-slash-’n'-burn mammogram, which I was told at the time was okay, but turned out much later not to be. That is a genuine recurve archery bow and a real leather quiver holding a bunch of actual fletched arrows, but they don’t, alas, belong to me. I’ve often thought I would enjoy archery, and I looked into it a few years ago. But it was nearly impossible to find a place around here to learn how to do it. Now that I’m more amazonian, I may look into it again.

I don’t remember who I’ve told what to anymore. But I know I posted here about my adventures with my six-month post-slash-’n'-burn mammogram, which turned into two mammograms. One of the reading radiologists was “concerned” about it, and the other one felt that I needed another mamm immediately because of some “residual calcifications,” but apparently neither one of them was concerned enough to tell me. I didn’t know that there was anything suspicious till several weeks later, and only because I called my surgeon’s office to ascertain what the final written report actually said. That’s when I found out that she never got the report, and when her assistant tracked it down, I discovered I was supposed to have had a second, diagnostic mamm “immediately.”

Long story longer, the morning I went to get the results of my diagnostic mammogram and meet with my new medical oncologist, my new car was hit by another car that had been hit by third car, while I was stopped at a cross street, minding my own business, waiting to take a turn. This was five minutes from my house. Honestly, you can’t make this stuff up. As soon as I established that we were all breathing, that no one was bleeding, and exchanged info with the other two drivers, I rushed from the scene. There was no way in perdition that I was going to sit there and wait for the police and be late for my appointment to find out whether or not I had more breast cancer. Wild horses, chocolate ganache cake, hot sex with George Clooney, a million bucks, none of that would have prevented me from getting to that appointment on time. Well, maybe I’d have been willing to suck face with George for a minute and get his phone number for later. Hmmm. Okay, I’d have been out-and-out late for a million bucks. But otherwise……

So then, it turned out that the driver who caused the accident — by missing a stop sign at an incredibly stupid three-way intersection where the car that has the right of way comes barreling around a blind turn, usually too fast, and usually taking a left turn — had unwittingly allowed her car insurance to lapse. Okay. I’m covered for that. Oh, and did I mention that the other two cars both belonged to out-of-state drivers? In any case, I had to play phone tag with insurance processors for weeks in order to move forward with the claim. In the first place, my claims guy couldn’t seem to grasp the concept of answering a direct question from me, left in a voice mail to him, by leaving a direct answer in a voice mail to me. Oh, no. That would be too convenient. No, no, every message he left included the same pointless statement: “I got your message, please call me back at the office.” This forced me to call him again and again and leave yet another voice mail that would yield no useful response. Finally, I called the regular claims department, got his boss and complained. Loudly. When I finally did talk to him, he kept telling me what I had to do, whom I should call, etcetera and so forth, until I began to wonder what he in fact did all day and why I was paying my premiums to pay him to do it. The other claims dude (I just mistakenly typed ‘dud’ — hah, hah, hah — he was a dud!) for the company that insured the car that hit mine after it was hit by the lady who went through the stop sign (I should post a diagram…) was a real charmer. His response to my questions was, “Excuse me, ma’am, but I don’t understand why you’re calling our insurance company.” If I could have reached through the phone to choke him, I would have. “Because your driver’s car,” I said, “which was hit by an uninsured driver, which is insured by your insurance company, smashed into my car.” Dipshit, thought I. “Well, you have to call the uninsured driver and fight it out with her,” said he. Apparently, in some states, insurance companies don’t have to provide actual coverage unless they feel like it.

Well, at long last, finally I dropped my car off the other day at the body shop to get the front bumper fixed. As I was walking to the parking lot to pick up my rental car, I walked past my car and noticed that someone had hit the rear bumper, evidently some time in the last 24 hours. At least I was already in the right place to get it fixed. Naturally, I had to file another collision claim, but this one went a lot faster. It seems that if you know exactly how your car got damaged, it takes forever to get your claim settled, but if you have no idea what the heck happened because some schmuck in a parking lot smacked into your car while you were picking up your dry cleaning, your claim gets processed immediately. There’s a lesson in this. Lie, that’s the lesson.

I drove the rental car to meet my girlfriend for lunch. When I parked the car and went to lock it, the stupid keyless entry thing didn’t work. After lunch, I went to Radio Shack, changed the battery, and got it to work, but only on the trunk & horn switches. I still couldn’t lock or unlock the car. So for the next two days I had to drag everything with me (laptop, workbag, cell phone, stethoscope, pocketbook, etc.,etc.) in and out of the damn car into every patient’s house I visited for work until Friday, when I had to go back up to car place and get a new keyless entry thingy. Cripes. Plus, it has rained almost solidly every day for weeks now in southern New England, and we have a flood watch in effect tonight & tomorrow, so really I should have just rented a boat and sailed down Narragansett Bay to get home. I hear they’ll be building an ark on the Providence River any day now. Or I could just swim.

Other than that, life is great!!


Please click on the post title or the comment link below to post a response.

pixelstats trackingpixel